The President of Sedoo Initiative for Children with Special needs Mrs Kawan Aondofa Anjira said there is a need to advocate for the rights of children with special needs. While also promoting their acceptance and quality of life through re-orientation, professional information and the provision of accessible care support to their families.
The President stated this at the opening ceremony of the centre in Abuja.
According to her, children with special needs through health conditions or brain abnormalities deserve fundamental human rights to love, care and access to basic services such as physiotherapy, psychological support, education and occupation therapy and most importantly good shelter.
“We envision a society where children with special needs have all the basic needs of life. We have to educate ourselves and our communities so that we would not continue to waste the lives of precious children.”
Speaking further, she added that Sedo initiative emerged out of Aondofa and Kawan’s quest for answers, and the care of nurturing two of their children who were born with cerebral Palsy a form of brain abnormality.
“Being committed to improving the lives of children with special needs, due to the lost of Sedoo their child, Mr. & Mrs Aondofa mustered the strength and resilience to establish the Sedo initiative for children with special needs”, said Mrs Anodofa.
” Faced with the challenges of raising two Cerebral Palsy children in a society where these categories of children are regarded as spirit or snakes. The couple with a lack of information accessibility, health, support centres and comprehending the pride of other children, conceived this framework home for children with special needs.
She further noted that the initiative is working with people and institutions who shared common interests in advocating for the right of children with special needs.
The Permanent Secretary, Ministry of the interior, Dr Shwahib, represented by the assistant Director Stella Amajuoyi, said the love for children with special needs has drawn him to the initiative.
Dr Joseph Mbahan, a Center Physiotherapy, highlighted some causes of cerebral palsy, which he said is the paralysis of the brain that occurs during either pregnancy or prolonged labour.
He added that a medical condition can only be managed through physical exercise since it has no permanent cure.
Retired Major General Emmanuel called for support from the local and international donors for improved implementation of the initial project goal.
While also stating that parents with special needs children should care for and love them as well as they are a gift from God.
Mrs Avery Gavar the director National Human Righ Commission and Chairperson of SECHILD, said that although the government through the establishment of person with disability commission has rectified and made effort through the right of persons with disability, but there is no enough recognition for children living with special needs in our society .
“This is down grading because they are the one to receive adequate care. The implementation of the disability act involve government as the primary person with this responsibilities, same with individuals and groups.”
“We need alot of support and recognition from government and individuals, and groups so as to strengthen advocacy implementation of the fundamental right of children with special needs.